tag:blogger.com,1999:blog-9910550.post7261934523841821516..comments2023-11-18T11:24:52.834-08:00Comments on Tales from the Den of Chaos: So {happy, upset} I could cryMother of Chaoshttp://www.blogger.com/profile/12176092618150502244noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-9910550.post-84644753460705071432008-01-31T08:38:00.000-08:002008-01-31T08:38:00.000-08:00Oops..."in understanding"...*sigh*~MOops..."in understanding"...*sigh*<BR/><BR/>~MAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-67734089633106571772008-01-31T08:36:00.000-08:002008-01-31T08:36:00.000-08:00Hi Tama,Ditto what Mo said. I hope everything goes...Hi Tama,<BR/>Ditto what Mo said. <BR/>I hope everything goes well this week...one more thing you might want to request from your health insurance co. or doctor is a PET scan. I believe it shows neurological patterns and would be a great help in understand what *might or might not* be connecting or if there is another issue in the body causing issues.<BR/>Hugs to you all.<BR/>MishAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-12004900673998130832008-01-29T14:46:00.000-08:002008-01-29T14:46:00.000-08:00Hi Tama,I spoke with your hubby at the D fair and ...Hi Tama,<BR/>I spoke with your hubby at the D fair and mentioned to him some articles that I've read on food allergies, especially gluten. If you haven't already (because you *are* a fantastic mom) think about getting Capt. Adventure blood allergy tested and also insist on an MRI to rule out any side issues. Regardless of any outcome, you have a beautiful family and a wonderful little guy. I Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-1136941793463173502008-01-26T13:46:00.000-08:002008-01-26T13:46:00.000-08:00I just came over from Persistent Illusion and wish...I just came over from Persistent Illusion and wish I could convey my support for what you're going through.<BR/><BR/>I had twin boys evaluated at Early Intervention 5 years ago, it was a frightening time. Eventually we opted not to go with the EI recommendations, which is a story in itself. Best wishes to you and Captain Adventure.Shellyhttps://www.blogger.com/profile/04415800632918851226noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-14066208387505112922008-01-25T15:13:00.000-08:002008-01-25T15:13:00.000-08:00Big hugs to you and Captain Adventure - and all th...Big hugs to you and Captain Adventure - and all the rest of the Denizens. It's tough but you'll come out on the other side of this in great shape. Having kids who are "wired a little differently" is challenging and frustrating and tiring, sure - but also joyous and rewarding and FUN! Honest! Hang in there and I'll be saying prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-18419965105537149232008-01-25T10:22:00.000-08:002008-01-25T10:22:00.000-08:00*hug*Been there. Not with Autism, but with other ...*hug*<BR/>Been there. Not with Autism, but with other diagnosises on my oldest daughter (now safely 19 :-) I remember the pushing others trying to get proper testing of all ranges. Doctors saying this or that was normal, but knowing in my heart that something was wrong. So the relief comes when we were finally getting the testing. Also comes the fear, because up till that time it wasn't Ewe-nisshttps://www.blogger.com/profile/03956410362427306671noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-1201526016382782962008-01-25T08:53:00.000-08:002008-01-25T08:53:00.000-08:00Dear, dear Tama--you are in the very hardest stage...Dear, dear Tama--you are in the very hardest stages of "finding out whether or not your kid has autism," but I tell you, as the mom of a kid that stopped talking at 18months and would have huge tantrums and didn't make eye contact and eventually got a diagnosis of "mild autism", it gets better. I'm not going to lie, it takes years, but my son is 10 now, and he's great company, funny, articulate Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-52055170293994417622008-01-25T08:47:00.000-08:002008-01-25T08:47:00.000-08:00Oh dear Gussy, I'm so glad you finally got some ac...Oh dear Gussy, I'm so glad you finally got some action going for your little guy. Dissolving can be cathartic, allowing you to succumb to your fears and then get yourself together to face what comes next. You'll finally get some answers and be able to move forward. Do let us know how it goes... I'll be thinking of you!Marty52https://www.blogger.com/profile/13237461237107850391noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-39364502860575726152008-01-25T06:51:00.000-08:002008-01-25T06:51:00.000-08:00Go ahead and dissolve for a little while. My son J...Go ahead and dissolve for a little while. My son Jake's best little friend has Aspbergers (sp?). He's come a long long way from when he was three, and his mom described him as "wired a little differently somehow". She, like you, knew something was up. <BR/><BR/>So, take your time. Don't feel bad about feeling bad. You'll get it all sorted out soon enough. We are all here for you.Very Herodotushttps://www.blogger.com/profile/17099848123689535541noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-67224038289769503802008-01-25T06:21:00.000-08:002008-01-25T06:21:00.000-08:00Good for you for hanging in there and demanding te...Good for you for hanging in there and demanding testing and treatment for your boy. As a *retired occupational therapist* I know that there are lots of things that can help your child.<BR/><BR/>My favorite (worst) story about testing children involves my little brother. When he was 5 my Mom wanted to enroll him in a certain school. They required an IQ test. The idiot psychologist that tested Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-77439547697607646572008-01-24T20:32:00.000-08:002008-01-24T20:32:00.000-08:00At the end of a crazy day, your Captain Adventure ...At the end of a crazy day, your Captain Adventure story is a ray of sunshine. You know your little guy is a wonderful person, and whatever help he needs to show off all of his personality to folks outside his family, well, good for you for getting that for him so others can see sooner what a great fellow he is! Hang in there!Science PhD Momhttps://www.blogger.com/profile/03927647627619995276noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-54471423396038046142008-01-24T19:02:00.000-08:002008-01-24T19:02:00.000-08:00I wish I knew you in person so I could give you a ...I wish I knew you in person so I could give you a big, giant hug. You are such an awesome mom. (And yeah, I've read about your bad days, too.) But your commitment to getting your son what he needs, no matter how hard it is for you, is inspiring, and always makes me tear up. Here's hoping the tests reveal Captain Adventure in all his glorious uniqueness--and point you toward helping him be hisYarnhoghttps://www.blogger.com/profile/06625926254864861603noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-90527726090018423432008-01-24T15:42:00.000-08:002008-01-24T15:42:00.000-08:00Hugs and thoughts to you and Captain Adventure. W...Hugs and thoughts to you and Captain Adventure. We are all thinking of you and your little guy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9910550.post-86373685568100454792008-01-24T14:50:00.000-08:002008-01-24T14:50:00.000-08:00I'm so glad you're going to be able to get him ful...I'm so glad you're going to be able to get him fully tested. Not being sure is definitely harder and more stressful than knowing, because once you know, you can make a plan. My sister-in-law is a professional working with kids with autism, and if she is any indication, the people in the field are wonderfully kind and competent. I'll wing a few prayers to the Being in charge that the outcome is patricehttps://www.blogger.com/profile/14509524513784031504noreply@blogger.comtag:blogger.com,1999:blog-9910550.post-11075307650570161582008-01-24T14:21:00.000-08:002008-01-24T14:21:00.000-08:00*big hugs* All through my pregnancy I was terrifi...*big hugs* All through my pregnancy I was terrified of autism. Totally terrified. I really hope they are able to evaluate him, figure out what's going on and get him the help he needs ASAP.Anonymousnoreply@blogger.com